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Prenatal
  • Liliana's Health , Prenatal

Life with the Mini One Button

Even though this button is a lot easier to hide compared to Liliana’s tube, it’s actually a lot messier. There’s …
  • Growing Pains , Liliana's Health , Photos , Prenatal

Friday Photos – December 3, 2010

Sorry that today’s post is a little late! Liliana actually slept in this morning, giving me a chance to do …
  • Liliana's Development , Liliana's Health , Prenatal

G-Tube and Back Brace Difficulty

Yesterday we gave Liliana her first tub bath in a long time. Her hair is looking much better (sponge baths …
  • Liliana's Development , Photos , Prenatal

Friday Photos – November 26, 2010

I hope everyone had a great Thanksgiving! We spent ours with Sean’s family and we all had a good time. …
  • Liliana's Development , Liliana's Health , Photos , Prenatal

Friday Photos – November 5, 2010

We went to see the pediatrician this past Monday for Liliana’s one-year check-up. Her stats were the following: Height: 2′ …
  • Prenatal

Checkup at 35 weeks, 5 days

Ahhh, Friday. Today was my 2nd checkup of this week. The non-stress test was first this time around, so I …
  • Prenatal

Checkup at 35 weeks, 2 days

This week’s first checkup went very well. We began with the ultrasound, which took at the most 2 minutes. The …
  • Prenatal

The Third Week on Bed Rest

Yesterday was the beginning of my 35th week and I am now starting my third week of bed rest away …
  • Prenatal

Checkup at 34 weeks, 5 days

Liliana is doing great still! The non-stress test proceeded perfectly yesterday. Liliana was her usual active self and decided that …
  • Prenatal

Starting Preterm Labor on October 2nd

Being a patient at CHOP and having a baby diagnosed with CDH, the doctors told me that I would have …
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About Liliana

Liliana with apparent CDH at 15 week ultrasound

Liliana was diagnosed with congenital diaphragmatic hernia (CDH) when I was pregnant with her at 15 weeks. A hole in the left side of her diaphragm allowed her stomach, spleen, and some of her intestines to move up into her chest, which left little room for her lungs to grow.

She was born at 36 weeks gestation and went into surgery 2 days later to have the CDH repaired. The surgery was a success and Liliana was able to breathe on her own after a week on the ventilator. She came home after 23 days in the hospital.

She is now dealing with reflux (GER) and weight gain issues, but we're working everyday to improve her health and make her happy.

Mercy, Liliana and Sean Tapscott