Liliana is a survivor of congenital diaphragmatic hernia (CDH), a condition where a hole in the diaphragm allows abdominal organs to rise into the chest, and this blog is a place where friends and family can go to be updated on Liliana’s health and development.
If this is your first time to the blog, I advise reading about the beginning before anything.
Liliana was diagnosed with congenital diaphragmatic hernia (CDH) when I was pregnant with her at 15 weeks. A hole in the left side of her diaphragm allowed her stomach, spleen, and some of her intestines to move up into her chest, which left little room for her lungs to grow.
She was born at 36 weeks gestation and went into surgery 2 days later to have the CDH repaired. The surgery was a success and Liliana was able to breathe on her own after a week on the ventilator. She came home after 23 days in the hospital.
She is now dealing with reflux (GER) and weight gain issues, but we're working everyday to improve her health and make her happy.
1 Comments
Anita
Thank you for posting about the challenges of raising a CDH child. I am blessed with twin girls, born to us June 23, 2010. While Coco is completely healthy, Celeste was born with left-side CDH. I was diagnosed at 32 weeks, so we didn’t have much time to absorb and prepare. After a lengthy stay of 6 months at BCCH, we were able to bring her home! We are also dealing with the effects of reflux and oral aversion as well. Reading your blog has allowed us to be able to connect with someone who understands the challenges. Thank you again!!