© Mercy Tapscott 2016

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Liliana’s Health
  • Liliana's Development , Liliana's Health , Photos

Moved In, But Barely Settled

September 02, 2012
Now that it’s a holiday weekend, I have some time to actually make a post! We’re Finally Moved In Sean …
  • Liliana's Development , Liliana's Health

It’s Not Friday Yet?

December 08, 2011
Okay, I know it’s Thursday…but when Friday comes around, I have no time to get out a proper post and …
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A Snowy Birthday

November 04, 2011
Liliana turned 2 years old last Friday. While we would have liked to celebrate it with friends and more family, …
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A Hurricane, A Blackout, and 2 Crazy Little Kids

September 02, 2011
This past weekend was a hurricane weekend, quite literally. On Saturday afternoon, we watched Hurricane Irene trudge up the East …
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Liliana’s Poor Weight Gain

August 26, 2011
We saw the nutritionist on Wednesday and it turns out that Liliana’s not doing very well with her growth. Only …
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A Late Night for an Early Friday Post

June 03, 2011
I’m writing this now (at 1:40 in the morning) because I have to go to CHOP during the day to …
  • Liliana's Development , Liliana's Health

Changes Moving Forward

April 19, 2011
What is life but a series of changes? Liliana’s first meeting with her occupational therapist was yesterday. Kristy was very …
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Is Damien Getting a Bad Sleeping Habit?

March 13, 2011
I have some time before heading off to bed so here’s a late night update! These last three nights, Damien …
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Friday Photos – February 18, 2011

February 18, 2011
So much has been happening! Damien went to the pediatrician earlier this week and weighed in at 14 lbs 4 …
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Friday Photos – February 11, 2011

February 11, 2011
I have lots of good news this week! Liliana went to the pediatrician for her 15-month checkup and she’s back …
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About Liliana

Liliana with apparent CDH at 15 week ultrasound

Liliana was diagnosed with congenital diaphragmatic hernia (CDH) when I was pregnant with her at 15 weeks. A hole in the left side of her diaphragm allowed her stomach, spleen, and some of her intestines to move up into her chest, which left little room for her lungs to grow.

She was born at 36 weeks gestation and went into surgery 2 days later to have the CDH repaired. The surgery was a success and Liliana was able to breathe on her own after a week on the ventilator. She came home after 23 days in the hospital.

She is now dealing with reflux (GER) and weight gain issues, but we're working everyday to improve her health and make her happy.

Mercy, Liliana and Sean Tapscott